Tuesday, June 27, 2017

Cue the Music: It's a Small World (and you meet people in the most unexpected places)

I'm sending out this blog post from lovely Charleston, S.C. I was invited here on a press trip sponsored by the American Cancer Society and Extended Stay America hotels, to highlight Hotel Keys of Hope. It's a program that offers low or no-cost hotel rooms to people who are diagnosed with cancer and  must travel away from home for treatment.

It's no secret that being ill with an illness like cancer can have a significant financial impact and this program aims to help relieve some of that impact and stress. I'll write more about the program tomorrow - we have one more day (today) of this event and I have more to learn. But I was psyched about a "it's a small world" moment I had yesterday.

When you're on a press trip, you rarely know anyone else. It's like being invited to a big party and you don't even really know the host. So no matter how introverted or shy you may be, you have to put yourself out there. In this case, I have stories I have to write about the people I meet, so I really need to put myself out there.

As I was going around meeting my fellow event attendees, I saw a lovely young woman and her companion who I'd not met yet, so I went over to chat. As we exchange the usual "where are you from?" question, she told me they were from Montreal. OK. I live in Montreal. Small world. Where in Montreal. St-Henri. Ok, small world continued. My oldest son lived there for a while and my youngest son works in that area now. I told her I live in NDG (another borough). She said she had too and mentioned a street not far from me. Ok, this world is getting smaller. Then I mentioned the suburb I grew up in and raised my children (Chateauguay), and that's when things got really "woah." She went to school on our street. She is the same age as my daughter, but they went to different schools.

Nalie Augustin (she's the younger, prettier one!)
And then I realized who she was. Nalie Augustin. She is a young woman who had been diagnosed with breast cancer when she was 24 - a very unusual diagnosis at that age. She had been featured in our local news and that's where I'd seen her. You can read about her on her website and her blog.

She and her boyfriend, Vee, are taking videos and lots of photos of their time here because that's what they do. Nalie has a YouTube show, in addition to her site, blog, and other social media presence. She offers tips to others who are living through cancer.  She has a mission:

"As a Writer, YouTuber and Speaker, I share my journey for 3 reasons:

Inspiration: I want to inspire you to NEVER GIVE UP! Whether it’s cancer, or whatever it is you wish to conquer, take whatever you can from my crazy journey and let it catapult you into LIVING the life you’ve always dreamed of.

Aspiration: I have big dreams and I refuse to let cancer stop me from achieving them. Knowing that life is short and clearly, we have no idea what tomorrow will bring – every day, I aspire to be better, do better and make a difference in this world for as long as I’m in it.

Awareness: It is my duty to prove that breast cancer doesn’t just happen to elder women. That even the healthiest people are not exempted. Generation X- Y – Z: Check your boobs! I vow to leave as much information as possible for women who may follow my footsteps by providing knowledge that I wish I had!"

She's an amazing woman with a great message to share. I'm glad I met her.

Monday, June 26, 2017

Do Nurses Have a Role in Complementary Therapies?

Last year during the Olympics, the practice of cupping was brought to the forefront. Many athletes were spotted sporting large round welts on their their back, shoulders, and upper chest that were caused by cupping. This caught the attention of the sports analysts and reporters, and the Western world quickly became interested in this new-to-them practice.

Cupping is an old traditional form of Chinese medicine, often used in conjunction with acupuncture. I went for acupuncture last week to help deal with a headache I had since January. It was a sinus-type headache but tests and scans showed that there was no infection, allergies, inflammation, nothing. So, I returned to an acupuncturist I'd visited a few years before. I forgot that she did cupping after the acupuncture session:

Cupping mark on my shoulder

It doesn't hurt while cupping is done and while it looks like a nasty bruise, it's only tender if you press hard on it. It looks awful but - my headache is virtually gone. It's down to about 10% of what it was before. I'll be going for another session later this week. So was it the acupuncture? The cupping? Both?

Practitioners claim that cupping can treat many disorders, including asthma, arthritis, GI upsets, and chronic pain, among others. Generally, the practitioner heats the air in a cup, usually with a flame, and the cup is placed on the skin. This produces suction. It’s believed that this suction promotes blood flow to the area, resulting in better health. When the cup is removed, a red or bruising mark may be left behind.

Regardless of what we may personally believe about complementary and alternative medicines, patients are using them. An article I wrote for Oncology Nursing News in 2015 stated that, “53% of American adults used CIT [complementary and integrated therapies] at some point in their lifetime, and 42% said they used it within the past year. People with cancer reported even higher use: 65% of cancer survivors used CIT at some point, and 43% used it within the past year.”

As nurses in North America, we generally work in facilities that focus on evidence-based medicine. Some facilities have developed integrative therapy departments, where patients can benefit from complementary medicines, such as acupuncture or massage therapy, along with Western medicines. These include facilities such as Johns Hopkins, Cleveland Clinic, and Mayo Clinic. I wasn’t able to find any similar departments associated with Canadian hospitals, although many major cities do have integrative medical clinics. So what do we say if patients ask us our opinions on complementary medicine?

The College of Registered Nurses of Nova Scotia published guidelines for nurse practitioners and registered nurses on the topic. The document reviews the nurses’ role in therapies, the nurses’ ethical and professional responsibilities, and how nurses might have a role in practicing complementary therapies. The college concluded: “Registered nurses and nurse practitioners can be actively involved in the delivery of CAHC therapies or simply help clients access appropriate information and make treatment decisions. Regardless of their role, RNs and NPs must be well informed and possess the appropriate knowledge and skills to provide safe care. Having evidence informed knowledge of potential benefits and risks of particular therapies is crucial. As RNs and NPs strive to provide comprehensive care for their clients, they must always ensure that they practise CAHC within the context of a nursing framework and within their standards of practice and code of ethics.”

Personally, I believe in some types of complementary medicine, but not necessarily alternative medicine. I have used acupuncture and massage therapy with good results. Complementary means that the treatment is in conjunction with evidence-based medicine practices. Alternative implies that the treatment is instead of. However, regardless of our own beliefs, it is vital that our patients trust us enough that they tell us if they are undergoing other forms of treatments or therapies. They may be more willing and open to telling their nurses than their doctors, for fear that their doctors will insist that they stop their treatments. As nurses, we can help them understand why it’s important that they be open with their treating physicians.

Do you see a role for nurses in complementary health practices?

Thursday, June 1, 2017

Sepsis – So Deadly, So Under Recognized

I work with a US-based group, Sepsis Alliance (SA). It’s a patient advocacy group with a mission to raise sepsis awareness and save lives. While it’s an American organization, the situation in the US parallels that of Canada when it comes to sepsis recognition and management. According to a report issued by Stats Canada in 2011, one in every 18 deaths in Canada is due to sepsis—one out of every 18. In the US, it kills over a quarter of a million people every year. That is a lot of deaths. Why is this happening?

Sepsis isn’t always preventable, this is true, but early detection and treatment often prevents it from progressing to severe sepsis and septic shock. A couple of years ago, I saw how effective a sepsis protocol can be. A family member who had a stroke was diagnosed with endocarditis while in the ICU. He showed the classic signs of sepsis onset and the staff was all over it, preventing more complications. Research has shown that for every hour patients with severe sepsis aren’t treated, their chance of survival drops by 8%. Like stroke and myocardial infarctions, there is a “golden hour,” during which immediate treatment can mean the difference between life and death.

I’ve learned a lot about sepsis and its impact over the past seven years, working with SA. One of my tasks is to respond to emails from people who want to share their stories of sepsis, hoping to spread the word to spare someone else the same pain. The stories, which are published on the site, are heartbreaking: parents who lost children, children who lost parents or siblings, survivors who live with life-changing effects caused by sepsis. So many of these victims may not have been in that situation if they or someone else had recognized the signs and symptoms of the condition.

Jim O’Brien, MD, former medical director of SA, often says that we could—right now—cut the sepsis death rate in half even without new technology, new tests, or new medications, simply with early recognition and immediate treatment with antibiotics and fluids. But there lies the rub –sepsis has to be recognized in time for successful treatment. People need to know about it and how to recognize it.

According to annual surveys commissioned by SA, most people have never heard the word “sepsis,” and many of those who have, don’t know what it means. The medical community is partly responsible for this. We talk about people dying of complications of pneumonia, of urinary tract infections, or meningitis. But that’s not that they died of; they died from sepsis. If someone has cancer, develops an infection and dies, it’s not the cancer that killed, them, it’s sepsis. But we don’t say that.

In three months it will be September, Sepsis Awareness Month. Let's find ways to spread awareness, to educate people about this often fatal illness that no one knows about. If you'd like to learn how, SA has developed tool kits for the public, professionals, and the media: Sepsis Awareness Month.

Wednesday, April 12, 2017

Whistle Blower Nurse Fined by Her Own Professional Body

I have two questions for you:

If you see something wrong and this something is hurting or having a negative impact on people, is it not your duty to speak out about it?

Does it matter what your profession is if you do call it out?

The answer to the first question should be - in my opinion - yes, it is your duty. The answer to the second question seems to be a bit more complicated if you are a nurse and you live in Saskatchewan, Canada.

I remember reading about Carolyn Strom last year and I didn't think too much about the story because I figured that the story didn't have legs and that everything would work out. I was wrong.

Two years ago, Carolyn, an RN, wrote a post on her Facebook page about the quality of care her grandfather received in a long-term care facility, particularly at the end of his life when he was in palliative care. She criticized the care, but according to reports, she also offered solutions - being a nurse herself, she understood the issues associated with caring for patients in a long-term care environment. However, her professional body, the Saskatchewan Registered Nurses Association, charged her with professional misconduct and Carolyn was fined $26,000.

What is worrisome about this is that Carolyn was not acting as a nurse at the time, she was acting as a private citizen who was concerned about the lack of quality care not just for her grandfather, but other patients at this facility and similar ones. She was expressing her frustration and disappointment as anyone might. Except, she has an RN behind her name, which apparently means she's not allowed to express those thoughts.

According to the Globe and Mail, this is what Carolyn wrote:

“My grandfather spent a week in palliative care before he died and after hearing about his and my family’s experience there, it is evident that not everyone is ‘up to speed’ on how to approach end of life care or how to help maintain an aging senior’s dignity. 
“I challenge the people involved in decision making with that facility to please get all your staff a refresher on this topic and more. Don’t get me wrong, ‘some’ people have provided excellent care so I thank you so very much for your efforts, but to those who made Grandpa’s last years less than desirable, please do better next time.”
So, Carolyn was charge by the body's disciplinary committee with five breaches:

1- Not respecting patient confidentiality
2- Failure to follow proper channels in making a complaint
3- Making comments that have a negative impact on the reputation of staff and a facility
4- Failure to first obtain all the facts
5- Using her status of registered nurse for personal purposes

Here are my arguments:

1- When it is your family member, patient confidentiality doesn't work here. When my mother was dying last year, I could have written about it all I wanted as long as she had never expressly forbidden it. (This charge was dropped).

2- Should Carolyn have written a letter to the facility or gone higher? Yes, she should have. However, she could have done so and still posted on social media as a private citizen. Many of us have stories of letters of complaint we've written that were never addressed.

3- So, does this mean we can't bash United Airlines for the horrible video of a man being forcibly removed from his seat a few days ago? Because it would have a bad reputation on the staff and organization?

4- Can anyone ever obtain all the facts?

5- We all use our background, education, and "status" for personal purposes. It's who we are. Does this mean that I can never comment on anything health or medical related - because I'm a nurse? Why is her call out of her grandfather's care any different than a sibling who isn't a nurse might have been?

So, what is the message here? If you're a nurse and you see bad care, shut up. Don't tell anyone. Don't vent on social media. Don't criticize. If you do, you're guilty of professional misconduct.

You can read more about her story here on the CBC website.

And there is a GoFundMe page raising money to help Carolyn pay those ridiculous fines, if you feel so inclined to help her.